ACPA Develops Registry of Craniofacial Treatment Outcomes The American Cleft Palate-Craniofacial Association has developed a registry for receipt of treatment outcome data. The purpose of the Craniofacial Outcome Registry (COR) is to promote optimum treatment for optimum results. The objectives are to provide for multicenter collection and reporting of treatment outcomes, to monitor changes in clinical outcomes, ... SIG News
SIG News  |   October 01, 1998
ACPA Develops Registry of Craniofacial Treatment Outcomes
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SIG News
SIG News   |   October 01, 1998
ACPA Develops Registry of Craniofacial Treatment Outcomes
SIG 5 Perspectives on Speech Science and Orofacial Disorders, October 1998, Vol. 8, 4. doi:10.1044/ssod8.1.4
SIG 5 Perspectives on Speech Science and Orofacial Disorders, October 1998, Vol. 8, 4. doi:10.1044/ssod8.1.4
The American Cleft Palate-Craniofacial Association has developed a registry for receipt of treatment outcome data. The purpose of the Craniofacial Outcome Registry (COR) is to promote optimum treatment for optimum results. The objectives are to provide for multicenter collection and reporting of treatment outcomes, to monitor changes in clinical outcomes, and to focus educational and research efforts to reach optimal levels of health care. All cleft palate/craniofacial teams are invited to become participants in collection and reporting of outcome data. A Council on Outcome Research, consisting of members of the association, provides advice on the choice and development of outcome measures. A computer program has been developed for entry, transmittal, and receipt and of outcomes data. Aggregated data will be reported periodically to the participating centers. These centers can then contrast their data with those reported for all centers. The Craniofacial Outcome Registry has captured national attention. The Medically Handicapped Children’s Bureau, the Health Care Finance Administration, and Tricare (formerly CHAMPUS) have each asked a member of their staff to provide a liaison representative to the Council. The Parameters for Evaluation and Treatment of Patients with Cleft Lip/Palate or Other Craniofacial Anomalies serves as a basis for selection treatment procedures for which outcomes measures are to be developed. CD-ROMs are planned and produced for each outcomes measure to promote reliability among the evaluators of the outcomes. The response of the multidisciplinary teams associated with the American Cleft Palate-Craniofacial Association, as well as individual members, indicates considerable interest in the Registry and desire to participate.
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